Every night when I go to bed, I pray that I will wake up with a body that works like it should. And so far, every morning, I wake up with a few seconds of pure bliss where I am not queued into reality yet and I don't yet realize what existence I am living in. And then the nausea waves over me and I remember. I remember that I am sick. I swing my legs over my bed and live one more day. A day that I honestly don't really want to live. But. Every day holds the possibility of a miracle. I have done a really good job of knocking down the doors of medical science and getting myself the best available care for my medical conditions, and now it is truly in God's hands. And so I continue to pray for a miracle, each day holds that possibility. If that miracles never comes for me, when I finally get called back to heaven and can be free from this body that seems to be fighting against me in all of my waking hours - I wonder if I will get to pass on my unused miracle to someone else. Maybe I will get to pick them. I hope I will get to pick someone with gastroparesis.
Just Living Life as Marie
Hi. I'm Marie. I'm 30 years old and I am sick. I have gastroparesis which causes nausea all day...everyday. I have high brain pressure that causes headaches, whooshing tinnitus, and CSF leaks. I have joint pain in my hips, feet, hands, and knees with a diagnosis of EDS. I am a math teacher. I still struggle to make it to work with my symptoms. I don't know what next school year will bring, but I hope to keep this blog in an effort to remember how far I have come and see where I am going.
Sunday, April 30, 2017
Monday, March 13, 2017
The Day I Flew in an Air Ambulance
Sept 3, 2016
Over Labor Day weekend 2016 my Maxillary Artery ruptured. They think it was a delayed complication from a surgery I had to fix a CSF leak. I recorded my story on my iPad so I wouldn't forget the miracles that occurred that day that kept me around. I'm glad I chose to video it because I am terrible about writing things down in a journal due to my arthritis in my joints and the fact I type much faster than I write. :)
A big shout out to my neighbor who was my hero that day.
Over Labor Day weekend 2016 my Maxillary Artery ruptured. They think it was a delayed complication from a surgery I had to fix a CSF leak. I recorded my story on my iPad so I wouldn't forget the miracles that occurred that day that kept me around. I'm glad I chose to video it because I am terrible about writing things down in a journal due to my arthritis in my joints and the fact I type much faster than I write. :)
A big shout out to my neighbor who was my hero that day.
Part 1
Part 2
Part 3
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